Skye's Soy Candles
Our Scents Reach the Sky
http://www.andrewscause.com
Each year Skye's Soy Candles donates a candle basket to this cause. This one that has truely touched my heart. Ever since I became friends with Andrew's mom Natasha. Not only am I helping Andrew but many other kids that are just like him. Please visit the site to see how you can help out. You will not regret it!!!
What is Beckwith-Wiedemann Syndrome?
Beckwith-Wiedemann Syndrome is a rare genetic disorder. It is an overgrowth disorder that affects approximately 1;15,000 children. Most of the time, the disorder happens spontaneously. Characteristics are: Large Birth Weight, Neonatal Hypoglycemia, Enlarged Tongue, Hemihypertrophy, Ear pits and creases, and red "stork bite" birth mark on the forehead. It also causes the baby to be born with his/her intestines outside of the stomach in a membrane covered sac. BWS children go through a lot of different tests and screenings. One of the most common screening is the cancer screening. Children with BWS need to get blood work every 6 weeks and abdominal ultrasounds every 3 months, to check for Wilms Tumors and other Cancers. These screenings are done until the age of 8.
For more information on BWS visit:http://www.beckwith-wiedemannsyndrome.org
Each year Skye's Soy Candles donates a candle basket to this cause. This one that has truely touched my heart. Ever since I became friends with Andrew's mom Natasha. Not only am I helping Andrew but many other kids that are just like him. Please visit the site to see how you can help out. You will not regret it!!!
What is Beckwith-Wiedemann Syndrome?
Beckwith-Wiedemann Syndrome is a rare genetic disorder. It is an overgrowth disorder that affects approximately 1;15,000 children. Most of the time, the disorder happens spontaneously. Characteristics are: Large Birth Weight, Neonatal Hypoglycemia, Enlarged Tongue, Hemihypertrophy, Ear pits and creases, and red "stork bite" birth mark on the forehead. It also causes the baby to be born with his/her intestines outside of the stomach in a membrane covered sac. BWS children go through a lot of different tests and screenings. One of the most common screening is the cancer screening. Children with BWS need to get blood work every 6 weeks and abdominal ultrasounds every 3 months, to check for Wilms Tumors and other Cancers. These screenings are done until the age of 8.
For more information on BWS visit:http://www.beckwith-wiedemannsyndrome.org
A FiveOh4 Uplifting is a family ran mission for the sole purpose of "Spreading Smiles Worldwide" to all children and adults in need of an uplifting
We as a FAMILY create gift bags and gift boxes for ALL children with major illnesses and disabilities
For children and adults who live in homeless shelters
To learn how you can be a part of this beautiful family's mission
